Adapting Experience-Based Co-Design to Disability Research: Co-Producing the CycLink Co-Design Study.

ABSTRACT:

Introduction

Participatory methods like experience-based co-design (EBCD) can be used to develop complex interventions, but may need adaptations when co-designers include young people with disability, parents and community partners. We aimed to adapt EBCD through co-production by involving people with lived experience of disability as co-researchers. This paper reports the co-produced protocol and reflects on co-researchers' contributions.

Methods

Guided by a six-stage co-production process, we formed a team of co-researchers, academic researchers, co-design convenors and evaluators. A five-person steering group, comprising three co-researchers and two academic researchers, led decision-making and project oversight. We communicated via videoconferencing, phone and email. Bri

SUBMITTER: Carey JJ 

PROVIDER: S-EPMC12037989 | biostudies-literature | 2025 Jun

REPOSITORIES: biostudies-literature