An eMERGEing definition of patient engagement in genetic counseling.

ABSTRACT: The concept of patient engagement has been widely studied for decades in the fields of medicine, nursing, psychology, social science, public health, and policy, and increased levels of patient engagement have been shown to improve health outcomes and strengthen reported experiences of care. Despite this, little research has been done to evaluate what patient engagement looks like within the context of a genetic counseling session. Additionally, there is limited literature from researchers based in the United States that aims to better understand patient engagement in non-English-speaking populations. This study is part of a larger protocol entitled "Multilingual Education Research in Genetic counseling Engagement (MERGE)," and it explores the elements that make up patient engagement in the

SUBMITTER: Fung J 

PROVIDER: S-EPMC12041834 | biostudies-literature | 2025 Jun

REPOSITORIES: biostudies-literature