Characterizing Patient-Reported Fatigue Using Electronic Diaries in Neurodegenerative and Immune-Mediated Inflammatory Diseases: Observational Study.

ABSTRACT:

Background

Fatigue is a prevalent and debilitating symptom in many chronic conditions, including immune-mediated inflammatory diseases (IMIDs) and neurodegenerative diseases (NDDs). Fatigue often fluctuates significantly within and between days, yet traditional patient-reported outcomes (PROs) typically rely on recall periods of a week or more, potentially missing these short-term variations. The development of digital tools, such as electronic diaries (eDiaries), offers a unique opportunity to collect granular, real-time data. However, the feasibility, adherence, and comparability of eDiary-based assessments to established PROs require further investigation.

Objective

This study aimed to evaluate the feasibility and acceptability of using a high-frequency eDiary to capture

SUBMITTER: Bennetot A 

PROVIDER: S-EPMC12068833 | biostudies-literature | 2025 May

REPOSITORIES: biostudies-literature