Cognitive debriefing of the Scleroderma Health Assessment Questionnaire in diffuse cutaneous systemic sclerosis.

ABSTRACT:

Background

Systemic sclerosis (scleroderma) is associated with functional disability and poor quality of life. Patient-reported outcome measures provide valuable insights into patients' experiences, symptoms, and perceptions of their health. The Health Assessment Questionnaire-Disability Index (HAQ-DI) and the Scleroderma Health Assessment Questionnaire (S-HAQ) are widely used patient-reported outcome measures in scleroderma research and clinical care. However, there is lack of data to (a) ensure and document patients with systemic sclerosis understand the concepts contained in these measure and (b) demonstrate face, item, and content validity for these items and measures.

Methods

We conducted cognitive debriefing of the S-HAQ in patients with diffuse cutaneous systemc scler

SUBMITTER: Khanna D 

PROVIDER: S-EPMC12133776 | biostudies-literature | 2025 Jun

REPOSITORIES: biostudies-literature