Understanding the Experiences of Patients With Pancreatic Cancer: Quantitative Analysis of the Pancreatic Cancer Action Network Patient Registry.

ABSTRACT:

Background

The Pancreatic Cancer Action Network (PanCAN) established its Patient Registry to gather real-world data from patients with pancreatic cancer and their caregivers, related to their diagnosis, symptoms and symptom management, treatments, and more. Results from version 2 of the PanCAN Registry are presented here.

Objective

We sought to gather and evaluate patient-reported outcomes data inputted into the PanCAN Patient Registry from December 2020 to January 2024. Statistical analyses were used to identify findings from a relatively small sample size (271 participants, as defined by people who filled out the Basics survey of the PanCAN Registry).

Methods

Participation in the PanCAN Patient Registry was voluntary, and participants filled out an electronic consen

SUBMITTER: Rosenzweig A 

PROVIDER: S-EPMC12149456 | biostudies-literature | 2025 May

REPOSITORIES: biostudies-literature