Evaluation of a Decision Support Intervention for Adolescents and Young Adults Newly Diagnosed with Cancer: A Pilot Randomized Trial.

ABSTRACT: Background. Limited involvement in treatment-related decision making can affect adolescent and young adult (AYA) cancer outcomes and well-being. Information on developmentally consistent approaches to enhance involvement in and experiences with decision making is lacking. In a pilot randomized trial, we evaluated the feasibility, acceptability, and usability of a Web-based decision support intervention (DECIDES) for treatment-related decisions, with/without coach support. Methods. Newly diagnosed/relapsed AYA (15-24 y old) and caregivers were randomized to usual care (n = 11), DECIDES (n = 21), or DECIDES+ (n = 21 with a coach). Feedback on DECIDES was obtained in interviews with AYA and caregivers (DECIDES, DECIDES+) and oncology clinicians (n = 1

SUBMITTER: Barakat LP 

PROVIDER: S-EPMC12202930 | biostudies-literature | 2025 Jan-Jun

REPOSITORIES: biostudies-literature