Community engagement, recruitment, and retention of minoritized participants in Alzheimer's disease and related dementia research: A systematic review of disparities.

ABSTRACT:

Introduction

Ethnoracial groups face the highest risk for Alzheimer's disease and related dementias (ADRD) but remain underrepresented in research, exacerbating health disparities. Understanding barriers and effective recruitment strategies is critical for fostering inclusivity. The aim of this study was to synthesize evidence on strategies to engage, recruit, and retain historically minoritized groups in ADRD research.

Methods

A systematic review was conducted using PubMed-MEDLINE, EMBASE, SCOPUS, and WEB OF SCIENCE. Studies focusing on ADRD research recruitment and retention among minoritized populations in the United States were included.

Results

Thirty-three studies identified key barriers, including mistrust, logistical challenges, and low awareness. Effective st

SUBMITTER: Assfaw AD 

PROVIDER: S-EPMC12230868 | biostudies-literature | 2025 Jul

REPOSITORIES: biostudies-literature