Incorporation of Patient and Public Involvement in Statistical Methodology Research: Summary of Workshop Proceedings.

ABSTRACT: Patient and Public Involvement (PPI) is well-established in applied health research but remains under utilised in statistical methodology research due to perceived irrelevance and communication challenges. This paper summarises a one-day workshop held in February 2024 in Leicester, organised by the University of Leicester and the NIHR Statistics Group, aimed at addressing barriers to meaningful PPI in statistical methodology. The workshop brought together statisticians and experienced public contributors to discuss strategies, share case studies, and offer practical guidance on conducting effective PPI. Key barriers identified included: (1) uncertainty about the relevance of PPI in methodology-focused research; (2) public contributors' anxiety over mathematical complexity; and (3) mismatch

SUBMITTER: Smith A 

PROVIDER: S-EPMC12261386 | biostudies-literature | 2025 Jul

REPOSITORIES: biostudies-literature