Unveiling the Unspoken: Exploring Taboo Thoughts and Difficult Experiences Among Carers of People With Brain Cancer.

ABSTRACT:

Objective

The primary objective of this research was to explore the rarely discussed, often unspoken, taboo thoughts and difficult emotions experienced by carers who support individuals with brain tumour related personality and behaviour changes. A secondary aim of this study was to examine coping strategies used by these carers.

Methods

A qualitative interview study was conducted with participants from Australia (n = 7) and Denmark (n = 6) (92% female, aged 42-68 years) who had been or were current carers for someone with a primary malignant brain tumour who was displaying personality changes. Semi-structured interviews were conducted. Using thematic analysis, key themes were identified.

Results

Four key themes related to carers' unspoken thoughts were identified: (1

SUBMITTER: McDougall E 

PROVIDER: S-EPMC12267670 | biostudies-literature | 2025 Jul

REPOSITORIES: biostudies-literature