Experiences and Perceptions of People With Advanced Cancer and Their Family Caregivers of Shared Decision-Making in Palliative Cancer Care.

ABSTRACT:

Aim

To explore the experiences and perceptions of people with advanced cancer and their family caregivers of shared decision-making, including how they and nurses are involved.

Design

Exploratory interview study.

Methods

Semistructured, individual interviews conducted in 2023 were analysed using reflexive thematic analysis.

Results

Twenty-four participants (15 people with cancer and 9 caregivers) participated in this study. The analysis generated five themes; (1) Decisions are ultimately about living or dying, (2) Desires and expectations for involvement in decision-making, (3) Uncertainty about potential and capacity for shared decision-making, (4) Good quality information and communication are key for involvement and (5) Nurses' contributions are unclear.

SUBMITTER: Rabben J 

PROVIDER: S-EPMC12271676 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature