Development and acceptability testing of a tracheostomy decision support video for parents.

ABSTRACT:

Objective

To develop a clinical, bedside intervention with peer parent narratives to help parents understand the shared decision-making (SDM) process, their role in the decision, and other parents' considerations in this context.

Patient involvement

To ensure that the intervention reflected parents' needs, we identified eight parents who had faced a tracheostomy decision for their child and were willing to talk about their experiences on a video recording. Half of the parents had chosen tracheostomy; some children of parents making either choice had died. We included parents of diverse racial backgrounds whose children had different diagnoses. Parent interviews, along with an explanation of SDM for parents, were edited into a 17-min video guided by iterative feedback from pa

SUBMITTER: Kukora SK 

PROVIDER: S-EPMC12272107 | biostudies-literature | 2025 Dec

REPOSITORIES: biostudies-literature