Reflections on youth partnership in a randomized controlled trial of an intervention to optimize transition from pediatric to adult care in inflammatory bowel disease.

ABSTRACT:

Background

Patient engagement allows for developing health interventions and research studies that align with the needs of people living with chronic diseases. Actively involving people with lived experience as partners in the design and governance of interventional trials is gaining prominence. However, there is a dearth of literature exploring the processes and procedures of patient partnership in various stages of randomized controlled trials (RCTs) with adolescents and young adults (AYAs) with inflammatory bowel disease (IBD), specifically.

Methods

This reflective viewpoint outlines how AYA patient partners were involved in a RCT of an intervention to optimize transition from pediatric to adult care in IBD through a Youth Advisory Panel. To achieve this objective, we: i)

SUBMITTER: Allemang B 

PROVIDER: S-EPMC12272582 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature