Creating the conditions for meaningful and effective PPIE in community-based public health research: learning from a UK-wide lived experience panel.

ABSTRACT:

Background

Research has been criticised for its extractive nature, often neglecting to reciprocate benefits to the communities involved. Addressing this, Patient and Public Involvement and Engagement (PPIE) has emerged as a crucial approach, engaging community members as research partners rather than subjects of research. However, it is important that PPIE is carried out in a meaningful way to avoid tokenism and extraction from communities. This paper reflects on the learning from the PPIE approach of the CommonHealth Assets (CHA) project, which partnered with 14 community-led organisations (CLOs) across the UK to evaluate their impact on health and wellbeing in their communities.

Main body

The CHA Lived Experience Panel (LEP), comprised of around 13 individuals from the pro

SUBMITTER: Ahmed M 

PROVIDER: S-EPMC12273268 | biostudies-literature | 2025 Jul

REPOSITORIES: biostudies-literature