Ethics support personnel's perceptions of patient and parent participation in clinical ethics support services in pediatric oncology.

ABSTRACT:

Background

There is an ongoing discourse about patient and parent participation (PPP) in Clinical Ethics Support Services (CESS), and this paper focuses specifically on case-based CESS. Participation in CESS is increasing slowly in many contexts due to practical and moral complexity. To gain deeper understanding of PPP in CESS, we need to delve into stakeholders' perspectives and the landscape in which they operate. The aim of the study was to explore perceptions regarding feasibility and moral appropriateness of PPP in CESS in pediatric oncology.

Methods

Nordic healthcare personnel (n = 26) working as ethics support personnel in pediatric oncology (and/or pediatrics in general) participated in focus group interviews (n = 6). Data was analyzed with qualitative inductive cont

SUBMITTER: Billstein I 

PROVIDER: S-EPMC12275289 | biostudies-literature | 2025 Jul

REPOSITORIES: biostudies-literature