Bridging minds: Participant perspectives on postmortem brain research and engagement.

ABSTRACT: Postmortem research participation remains underrepresented in research ethics discussions. Herein, we examined the associated perspectives of individuals preregistered with the Brain Bank for Aging Research at the Tokyo Metropolitan Institute of Gerontology. We conducted a postal survey targeting 88 preregistrants, yielding 52 responses (response rate: 59.1%, average respondent age: 79.5 years, range: 49-97). The questionnaire gathered information on the reasons for agreeing to participate, helpful information provided during the explanation, and expectations regarding future information. The stated reasons for participating included a desire to contribute to science, gratitude for medical care received, memories of relatives' past donations, and inspiration from staff enthusiasm and mater

SUBMITTER: Inoue Y 

PROVIDER: S-EPMC12279472 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature