Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers.

ABSTRACT:

Purpose

To identify the needs, preferences, and perspectives of people living with dementia and their carers to inform design and implementation of an in-home respite service.

Design/methodology

Exploratory, interpretivist, pre- implementation qualitative study using Consolidated Framework for Implementation Research.

Participants

People living with dementia and carers.

Data collection

Multi-person and individual semi-structured interviews.

Findings

15 participants: Four people living with dementia, 11 carers. Carers are exhausted and want a say in the development and delivery of services. People living with dementia and carers need safety, trust in respite staff and in the organisation, consistency, additional supports, and clear, transparent communicat

SUBMITTER: Grogan C 

PROVIDER: S-EPMC12279863 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature