A comparison of family health history of breast cancer, colorectal cancer, and diabetes in self-reported survey and electronic health records data, All of Us Research Program.

ABSTRACT:

Purpose

We used data from the All of Us Research Program to examine sociodemographic differences in family health history (FHH) survey access, availability of electronic health records (EHR) data, FHH knowledge, FHH in the survey and EHR data, and concordance of FHH in survey and EHR data for breast cancer, colorectal cancer, and diabetes.

Methods

We calculated percentages and standard errors of participants who accessed the FHH survey, reported no FHH knowledge, had EHR data available, had FHH data in the survey and EHR, and had FHH in the survey or EHR that was not captured in the other data source for breast cancer, colorectal cancer, and diabetes. We stratified by age, race and ethnicity, sex, sexual orientation, household income, employment status, education leve

SUBMITTER: Green RF 

PROVIDER: S-EPMC12281378 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature