Barriers and preferences in advance care planning: a mixed-methods study of end-stage kidney disease patients and caregivers in India.

ABSTRACT:

Objectives

To understand preferences for illness-related information, decision-making roles, and barriers to Advance Care Planning (ACP) documentation among patients with End-stage Kidney Disease (ESKD) and their caregivers in India.

Methods

A convergent parallel mixed-methods study was conducted from October 2022 to September 2023 at a tertiary care hospital in South India. Quantitative data were collected using a validated ACP questionnaire from 247 patient-caregiver dyads. Qualitative data were obtained from semi-structured interviews with 34 patients and 6 caregivers. Quantitative data were analyzed using descriptive and inferential statistics; qualitative data were analyzed thematically using Braun and Clarke's framework.

Results

Most patients (90.7%) and caregiv

SUBMITTER: Naik B 

PROVIDER: S-EPMC12291236 | biostudies-literature | 2025 Jul

REPOSITORIES: biostudies-literature