Risks and benefits of ChatGPT in informing patients and families with rare kidney diseases: an explorative assessment by the European Rare Kidney Disease Reference Network (ERKNet).

ABSTRACT:

Background

Rare diseases affect fewer than 1 in 2000 individuals, but approximately 150 rare kidney diseases account for about 10% of the chronic kidney disease (CKD) population, impacting millions across Europe and globally. The scarcity of medical experts for these conditions results in an unmet need for accurate and helpful patient information. Large language models like ChatGPT may offer a technological solution to assist medical professionals in educating patients and improving doctor-patient communication. We hypothesized that ChatGPT could provide accurate responses to frequently asked basic questions from patients with rare kidney diseases.

Methods

Medical professionals and members of European Patient Advocacy Groups (ePAGs) affiliated with the European Rare Kidney D

SUBMITTER: van Eerde AM 

PROVIDER: S-EPMC12296756 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature