Gaps in access to pulmonary hypertension care and opportunities for improvement: a multi-site qualitative study.

ABSTRACT:

Background

Pulmonary hypertension (PH) is a progressive disease leading to right heart failure and early mortality. Early recognition of the disease and timely initiation of PH-specific therapies for qualifying PH subgroups are crucial for improving patient outcomes. Yet delays in diagnosis and treatment of PH persist. We aimed to explore patient and provider perspectives on access to and timeliness of PH care across the patient's entire health journey from symptom onset through follow-up care.

Methods

We conducted a multi-site qualitative study at three expert PH centers in the United States. We interviewed 41 key informants including 21 patients and 20 providers (physicians, physician assistants, PH pharmacists, and PH nurses). Guided by a conceptual model of the care cont

SUBMITTER: Gillmeyer KR 

PROVIDER: S-EPMC12302599 | biostudies-literature | 2025 Jul

REPOSITORIES: biostudies-literature