Family planning, sexual activity and contraception in hereditary hemorrhagic telangiectasia: a European survey study.

ABSTRACT:

Background

Hereditary hemorrhagic telangiectasia (HHT) can influence the quality of life and social relationships, mostly due to epistaxis, but the topics of family planning, sexual activity and contraception have not been investigated to date. This study aimed to gain more insight: what is the influence of HHT on family planning, sexual activity and contraception?

Methods

This multi-language European survey study included a patient's and partners' version of a questionnaire designed specifically for this study. HHT patients were informed about the study through HHT expert centres, social media and websites of patient associations. Data collection took place between March- May 2023.

Results

The survey was completed by 572 patients with a definite HHT diagnosis, based

SUBMITTER: Hessels J 

PROVIDER: S-EPMC12317622 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature