From words to action: the development of the Neglected Tropical Disease Inclusion Score Card (NISC).

ABSTRACT:

Background

The importance of patient participation in designing and delivering services for persons affected by neglected tropical diseases (NTDs) has gained increasing recognition. Responding to this, persons affected by NTDs urged NTD-focused non-governmental organisations (NGOs) to take action. These NGOs are pivotal in addressing healthcare disparities and reaching marginalised communities. To address the insufficient progress on participation, a participatory initiative was launched to develop a tool designed to support NGOs in fostering inclusion and ensuring the meaningful engagement of affected persons in their organisational decision-making processes.

Methods

This research used an iterative, mixed-methods approach involving stakeholder input, semi-structured intervi

SUBMITTER: van Wijk R 

PROVIDER: S-EPMC12326779 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature