Written surgical informed consent elements in pediatric differences of sex development: pediatric urologist and endocrinologist perspectives.

ABSTRACT:

Introduction

Elective aspects of surgical management of pediatric differences of sex development (DSD) are associated with controversy. We examined North American pediatric urologist and endocrinologist perspectives regarding recommended and existing informed consent elements for written consent documents prior to pediatric genital surgery.

Methods

Focus groups with pediatric urologist and endocrinologist members of the Societies for Pediatric Urology (SPU, n=8) or Pediatric Endocrine Society (PES, n=8) were held to identify elements of informed consent for DSD-related urogenital surgery. Elements were subsequently included in web-based surveys in 2003 and 2020 (SPU: n=121 and 143; PES: n=287 and 111, respectively). Participants rated their level of agreement with including

SUBMITTER: Lapham ZK 

PROVIDER: S-EPMC12327251 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature