Impact of the Akwenda Intervention Program for cerebral palsy on caregiver-perceived burden, stress, and psychosocial functioning: A cluster-randomized trial in Uganda.

ABSTRACT:

Aim

To evaluate the effectiveness of the Akwenda Intervention Program in reducing subjective burden, stress, and the psychosocial and family functioning of caregivers of children with cerebral palsy (CP) in rural Uganda, and its relationship to child outcomes.

Method

This was a cluster-randomized, controlled, single-blind study of 100 caregivers of children and young people with CP (aged 2-23 years; 48 females) assigned to an intervention or control group. The Zimbabwe Caregiver Challenges Scale (ZCCS) was used to measure caregiver burden, while the Pediatric Quality of Life Inventory (PedsQL) Family Impact Module was used to assess caregiver psychosocial and family functioning. Customized questionnaires and video protocols evaluated caregiver knowledge and skills. Data were

SUBMITTER: Asige E 

PROVIDER: S-EPMC12336398 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature