MGBase: A Global, Observational Registry for Collaborative Research in Myasthenia Gravis.

ABSTRACT:

Introduction/aims

Patient registries are valuable tools for outcomes research in rare diseases such as myasthenia gravis (MG). Existing MG registries are limited by factors including a lack of geographical scope. MGBase has been designed as a global, observational registry aimed at studying clinical practice outcomes in MG.

Methods

MGBase was developed with the support of the independent MSBase Foundation. An international scientific leadership group (SLG) established a minimum dataset and outcome measures. Data are entered on a purpose-designed platform in real time and held in a web-based registry. Members can request access to the global dataset for investigator-driven substudies.

Results

MGBase data collection commenced in October 2021. From inception until April

SUBMITTER: Buzzard KA 

PROVIDER: S-EPMC12338016 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature