Epidemiology, disease evolution and economic burden of amyotrophic lateral sclerosis in France using the French national health data system.

ABSTRACT: Amyotrophic lateral sclerosis is a rare neurodegenerative disease that requires multidisciplinary care, resulting in extensive healthcare resource utilization. No study has explored the prevalence of amyotrophic lateral sclerosis or characterized associated healthcare resource utilization in France, despite its high burden on people living with amyotrophic lateral sclerosis, caregivers and the healthcare system. Herein, we conducted a France-wide retrospective study to describe the epidemiology, disease course and economic burden of amyotrophic lateral sclerosis. People living with amyotrophic lateral sclerosis were identified from the French population from 2012 to 2019 using the French national health data system. A milestone and symptom-based staging algorithm was developed to categoriz

SUBMITTER: Corcia P 

PROVIDER: S-EPMC12368419 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature