Communicating the ethical, legal, and social issues in neurobiobanking and stroke genomic research in Africa: Project intervention tools development and evaluation procedures.

ABSTRACT:

Background and aim

Issues concerning appropriate Community Engagement (CE) and communication of research outcomes with stakeholders have received the attention of scholars in different sub-fields of clinical research. However, given its novel nature, especially in Sub-Saharan Africa, CE addressing the ethical, legal, and social implications (ELSI) of neurobiobanking and stroke genomic research has not received much scholarly attention. Therefore, this study was designed as a pioneering effort to report the procedures for developing and evaluating intervention tools for the CE component of the African Neurobiobank for Precision Stroke Medicine ELSI Project.

Methods

A community-based participatory research design was adopted. The intervention tools we developed include general

SUBMITTER: Ojebuyi BR 

PROVIDER: S-EPMC12369658 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature