Developing Requirements for a Standardized System to Return Individual Research Results Back to Study Participants: Narrative Review.

ABSTRACT: The increasing prevalence of smart devices has created vast amounts of untapped data, presenting new opportunities for data sharing across various fields, such as environmental sciences, health management, and astrophysics. While a significant portion of the public is willing to donate personal data, we need to better understand how to obtain information about which data assets a person may hold and the risks, benefits, and potential uses of this data exchange mechanism. Developing a trusted data-sharing platform may increase participants' willingness to donate data and researchers' ability to return personalized results from research findings. This study aimed to develop a preliminary list of core requirements, which can be used to develop design recommendations for standardizing the retu

SUBMITTER: Carr RL 

PROVIDER: S-EPMC12387377 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature