"Meet us where we're at:" Towards engaging and inclusive research with young adults with a lived experience of cancer.

ABSTRACT:

Background/objective

Meaningful engagement with young adults (YAs) with a lived experience of cancer is important for conducting impactful research on issues that matter to them, and ensures their voices are central to shaping cancer research outcomes. This preliminary study explored barriers and facilitators to participation in research to identify strategies for making cancer research more inclusive and responsive to the needs of YAs.

Methods

This qualitative study involved twelve YAs (aged 21-43 years at time of interview) with a lived experience of cancer, who participated in a focus group or interview. Participants were recruited via multiple cancer charities/organizations and social media platforms. Data were analyzed using thematic analysis.

Results

Barriers to

SUBMITTER: Collaco N 

PROVIDER: S-EPMC12392343 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature