Social determinants of health and health-related quality of life in individuals with isolated dystonia.

ABSTRACT:

Background and objectives

Dystonia is the third most common movement disorder. Motor and non-motor manifestations of dystonia may impact Health Related Quality of Life (HRQoL), with lower HRQoL scores compared to the healthy population. People with generalized dystonia report worse HRQoL scores (vs. people with focal distributions). Social determinants of health (SDOH) may play a role in HRQoL outcomes in dystonia, but scant data exists. We aimed to examine differences in HRQoL scores in people with focal vs. non-focal (e.g., segmental, multifocal, generalized) dystonia and the association with SDOH.

Methods

129 participants with isolated dystonia, who were recruited through Mass General Brigham movement disorders clinic and enrolled in the Dystonia Partners Research Bank, c

SUBMITTER: Nelson C 

PROVIDER: S-EPMC12393166 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature