An exploration of the perspectives of Dutch adults experiencing a genetic condition on human germline gene editing.

ABSTRACT: Views of people with a genetic condition are crucial in deliberations on human germline gene editing (HGGE), but their perspectives are at risk to be devalued due to epistemic injustice and insufficient attention for the possible sensitivities surrounding HGGE. This study set out to explore the perspectives of people dealing with a genetic condition regarding HGGE, and the possible sensitivities surrounding this topic. We conducted a 2-phase qualitative interview (N = 29) and focus group study (N = 9) on the perspectives of people with or carrying a genetic condition and family members regarding HGGE. Insights from the interviews were used in the organization of the focus groups. We included 38 persons who have experiences with 18 different genetic conditions. Three main themes were identi

SUBMITTER: Arnold SJAN 

PROVIDER: S-EPMC12401827 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature