Racial and ethnic disparities in ALS: a longitudinal electronic health records study.

ABSTRACT:

Background

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease with limited treatment options and significant variability in care. Racial and ethnic disparities in ALS management and outcomes have been reported, but findings remain inconsistent.

Objectives

This study aimed to evaluate racial and ethnic disparities in ALS care, specifically differences in healthcare utilization, treatment patterns, and survival, within a large healthcare system.

Design

This retrospective cohort study analyzed electronic health records from a large healthcare system in Texas for patients diagnosed with ALS between 2013 and 2023, examining racial and ethnic differences in treatment and outcomes.

Methods

Patients were identified using International Classi

SUBMITTER: Kuo T 

PROVIDER: S-EPMC12402569 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature