Palliative Care Resource Utilization in Patients With Prion Disease.

ABSTRACT:

Background and objectives

Timely access to palliative care, a specialty focusing on improving quality of life for patients with serious medical conditions, is central to patients with prion disease. To optimize evidence-informed utilization of palliative care resources, we systematically evaluated the frequency of clinical features amenable to supportive care, the frequency and patterns of referral to specialty palliative care, and the methods of palliative care delivery in patients with prion disease across a multicenter health care system.

Methods

A retrospective review was conducted on electronic medical records of patients diagnosed with definite (neuropathologically or genetically confirmed) or probable prion disease (meeting established clinical criteria for Creutzfeld

SUBMITTER: Zayat R 

PROVIDER: S-EPMC12406364 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature