Cataloguing and evaluating Irish health data resources for primary care cancer research.

ABSTRACT:

Background

In Ireland, cancer is a leading cause of mortality. Optimising primary care cancer research is crucial for better patient outcomes and healthcare policies. This study identifies Irish health data resources relevant to primary care cancer research, addressing a gap in understanding data availability and utility to enhance cancer care.

Methods

We conducted a comprehensive review of Irish health data resources across multiple platforms, including a broad data search, expert consultations, literature review, and data synthesis. An expert roundtable refined our findings.

Results

Our review identified 39 data resources, including national registries, biobanks, and health system audits. We noted varying levels of data accessibility and comprehensiveness, with seve

SUBMITTER: Brady Bates O 

PROVIDER: S-EPMC12408799 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature