A mixed methods study to understand the role of knowledge in transition among youth with sickle cell disease.

ABSTRACT:

Abstract

Disease and management knowledge is crucial for individuals with sickle cell disease (SCD) transitioning from a pediatric to adult health care facility. However, there is a lack of understanding regarding the specific education needed and its association with an individual's ability to successfully transition. This study aims to explore the association between SCD-specific transition readiness assessment scores, patient characteristics, and the perceived importance and confidence in the individual's ability to manage their health and transition to an adult doctor. Semistructured interviews provided insights on education gaps and preferences. Eighty-four individuals completed the transition readiness assessment. Younger patients (aged ≤18 years) had significantly lower scor

SUBMITTER: Singh A 

PROVIDER: S-EPMC12410538 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature