Engagement Methods in Brain Tumor Genomic Research: Multimethod Comparative Study.

ABSTRACT:

Background

Engaging patients, care partners, and others in research planning and conduct is increasingly valued. However, identifying the most effective ways to do so remains a challenge.

Objective

This study aimed to evaluate participation and participant experience using 3 engagement methods with the Low-Grade Glioma (LGG) Registry's Optimizing Engagement in Discovery of Molecular Evolution of Low-Grade Glioma (OPTIMUM) project, part of the National Cancer Institute's Participant Engagement and Cancer Genome Sequencing Network.

Methods

We evaluated LGG Registry research advisory council (RAC) meetings, Twitter (now known as X), and Facebook discussions across 4 engagement activities with each group. Researchers recorded discussions and performed qualitative content

SUBMITTER: DeCamp M 

PROVIDER: S-EPMC12411796 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature