Caregiver experiences after the death of a person with dementia with Lewy bodies: A mixed-methods analysis.

ABSTRACT: BackgroundDementia with Lewy bodies (DLB) is a common degenerative dementia, but no studies investigate bereaved caregiver experiences.ObjectiveTo investigate the experiences of caregivers three months after the death of persons with DLB using a mixed-methods approach.MethodsDyads of individuals with moderate-advanced DLB and their primary informal caregivers were followed prospectively every 6 months until the person with DLB died. Caregivers completed a study visit with questionnaires and a semi-structured interview ∼3 months later. Spearman correlation coefficients and Wilcoxon rank-sum tests evaluated the relationships of post-death measures with pre-death patient and caregiver variables. Thematic analysis was used to analyze the interviews.ResultsSeventy-three caregivers completed vis

SUBMITTER: Armstrong MJ 

PROVIDER: S-EPMC12412333 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature