The European Pediatric Surgical Audit: Improving Quality of Care in Rare Congenital Malformations.

ABSTRACT: Since 2019, the European Pediatric Surgical Audit (EPSA) has been the official registry of the European Reference Network for Inherited and Congenital Anomalies (ERNICA). The primary aim of this prospective patient registry is benchmarking (quality of) care for patients with rare congenital malformations throughout Europe. Data collected comprise baseline, treatment, and outcome variables, permitting calculation of disease-specific, hospital-level quality indicator results reflecting between-hospital variation. This practice and outcome variation is fed back as actionable information to clinicians on a web-based, real-time dashboard to help focus local and central improvement initiatives. Secondly, realizing joint research initiatives with quality improvement purposes through secondary dat

SUBMITTER: Teunissen NM 

PROVIDER: S-EPMC12413265 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature