The experience of cerebral palsy stigma amongst adults living in the UK and Ireland: A qualitative co-designed project.

ABSTRACT:

Background

There is evidence that cerebral palsy (CP) could be linked to stigma and discrimination, however current evidence is limited to small qualitative studies. The goal of this co-designed survey was to elicit information on experiences of stigma and discrimination amongst a larger sample of adults in the UK and Ireland.

Methods

Quantitative questions about sources of stigma and qualitative questions designed to elicit information on experiences of stigma were shared via an online survey.

Results

Eighty-six people completed the qualitative survey, and 5 themes were generated that captured experiences of stigma and discrimination. Theme 1 (rigid stereotypes) captured the lack of awareness about the heterogeneity of CP. Theme 2 (impact on participation) highlighte

SUBMITTER: Smith KJ 

PROVIDER: S-EPMC12419618 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature