Parents' experiences of paediatric end-of-life care in the UK: a multisite qualitative study.

ABSTRACT:

Objectives

Despite the marked improvement in child mortality over the last two decades, more than 7 million infants, children and young people still die worldwide every year. In the UK, four National Health Service settings care for more than 60% of the children who die each year: neonatal and paediatric intensive care units and children and teenager cancer principal treatment centres. There is limited evidence on how end-of-life care is experienced by parents and how this differs across settings. We aimed to explore parents' experiences of receiving end-of-life care for their child in these settings.

Methods

A multisite qualitative study involving in-depth interviews with bereaved parents, analysed using reflexive thematic analysis. Recruitment via 14 National Health Servic

SUBMITTER: Peat G 

PROVIDER: S-EPMC12421113 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature