Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries.

ABSTRACT:

Background

The global prevalence of congenital heart disease (CHD) is increasing. Research on patient-reported outcomes (PROs) predominantly originates from high-income countries, resulting in an incomplete understanding of the true global burden of CHD from the patient perspective. Therefore, we described perceived health, psychological distress and quality of life (QoL) in a large sample of adults with CHD from the globe and explored the relationship between PROs and the income level of the countries.

Methods

Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart Disease-International Study II (APPROACH-IS II) represents an international cross-sectional investigation of PROs in 8415 patients from 53 centres across 32 countries. Patients complet

SUBMITTER: Moons P 

PROVIDER: S-EPMC12421120 | biostudies-literature | 2025 Aug

REPOSITORIES: biostudies-literature