A Qualitative Examination of the Content Validity of the EQ-5D-5L and EQ-5D-Y-3L in Adult and Paediatric Patients With Duchenne Muscular Dystrophy.

ABSTRACT:

Objective

This study examined the content validity of EQ-5D for Chinese patients with DMD. Specifically, it investigated: (1) the content validity of EQ-5D-5L in adult DMD patients and (2) the content validity of EQ-5D-Y-3L (Y-3L) in DMD patients aged 8-15 years.

Method

This qualitative study used semi-structured interviews and conducted one-on-one and online, with two groups of individuals with DMD to examine the content validity of the EQ-5D-5L and Y-3L. All participants were recruited from a nationwide DMD patient association. The study included both adult and paediatric DMD patients. Data were analysed using a framework approach.

Results

A total of 30 interviews were completed, with 15 for adult patients and 15 for paediatric patients. Overall, EQ-5D-5L and Y-3L c

SUBMITTER: Xu RH 

PROVIDER: S-EPMC12422114 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature