"It may cost you your money, it costs you your life": a framework for financial hardship in dementia.

ABSTRACT:

Background and objectives

Care for persons with dementia costs ∼ $500 billion annually in the United States. Few qualitative studies or conceptual frameworks of the financial experiences of people impacted by dementia exist. This study examined how patients and caregivers impacted by different types of dementia and at different points in the disease journey described financial issues within a palliative care context.

Research design and methods

We conducted a secondary analysis of data from qualitative studies of palliative care needs in dementia (2018-2020) that systematically asked about financial challenges. Interview participants were recruited from a specialty dementia center. Using a hybrid inductive-abductive approach and thematic analysis, we created a conceptual fra

SUBMITTER: Harrison KL 

PROVIDER: S-EPMC12427131 | biostudies-literature | 2025 Jul

REPOSITORIES: biostudies-literature