Prenatal counseling for heart disease: Perception of understanding and communication gaps.

ABSTRACT:

Background

Research on parental understanding following prenatal counseling for congenital heart disease (CHD) is limited. We aimed to evaluate parental knowledge of their fetus' CHD diagnosis and congruence between physician's and parent's assessments of parental understanding.

Methods

Paired surveys of pediatric cardiologists and parents of fetuses requiring neonatal heart surgery assessed parental knowledge and perceived understanding of diagnosis, treatment and complications. Gwet's agreement coefficients (GAC) were used to examine congruence.

Results

There was good congruence between 40 participating parents and cardiologists regarding knowledge of the diagnosis (GAC 0.89), need for neonatal surgery (GAC 0.81), need for further surgeries and lifelong care (GAC 0.

SUBMITTER: DeWeert KJ 

PROVIDER: S-EPMC12431847 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature