Families' Experiences Making Decisions across Time and Settings in Chronic Critical Illness.

ABSTRACT: Rationale: Chronic critical illness (CCI) results in high patient morbidity and mortality rates and imposes substantial burdens on families as surrogate decision-makers. Prior research has predominantly focused on families' decisional needs before tracheostomy in the intensive care unit despite CCI unfolding over a period of weeks to months across multiple care transitions and settings. Objective: To characterize families' decision-making experiences and reflections along the continuum of CCI across time and care transitions. Methods: We conducted semistructured interviews with family decision-makers of patients who received a tracheostomy for persistent respiratory failure after an acute illness, first within 2 weeks to 6 months after tracheostomy and again weeks to m

SUBMITTER: Moale AC 

PROVIDER: S-EPMC12449857 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature