"I had no idea what to expect": adolescent and young adults with cancer identify opportunities for patient-centered anticipatory guidance through narrative writing.

ABSTRACT: Adolescents and young adults (AYAs) have unique experiences with cancer, yet little patient-centered anticipatory guidance exists specifically by AYAs and for AYAs. In the ChronCan study, we analyzed writing narratives generated by AYA participants undergoing cancer treatment to gain insights into how AYA perspectives can inform patient-centered care. Rapid qualitative analysis was used to organize and synthesize narrative content for efficient turnaround of data to guide future intervention implementation. Analysis generated two clinically relevant themes across AYA narratives: 1) AYAs identified specific aspects of the cancer journey that surprised or overwhelmed them, and 2) AYAs shared advice to help support and guide other AYA patients with newly diagnosed cancer. Both themes, interco

SUBMITTER: Paul TK 

PROVIDER: S-EPMC12450048 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature