Longitudinal psychological well-being in caregivers of young children with cleft lip and/or palate.

ABSTRACT:

Objective

Caregivers of children with chronic conditions can experience psychological distress and an impact on quality of life (QoL). Cleft lip and/or palate (CL/P) is one of the most common congenital conditions worldwide. Utilizing data extracted from The Cleft Collective cohort studies in the United Kingdom, this study investigated longitudinal psychological well-being in caregivers of young children with CL/P, to inform screening practices and early intervention.

Methods

Baseline (post-diagnosis) and 5-year questionnaire data were extracted for 525 caregivers (342 biological mothers, 183 fathers/partners). Outcome measures included the PedsQL-Family Impact Module, the Perceived Stress Scale, and the Hospital Anxiety and Depression Scale.

Results

QoL significantly

SUBMITTER: Stock NM 

PROVIDER: S-EPMC12451232 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature