National Alliance of Sickle Cell Centers consensus standards for transition to adult care in sickle cell disease.

ABSTRACT:

Abstract

Sickle cell disease (SCD), an autosomal recessive hemoglobinopathy, affects ∼100 000 people in the United States.1 The process of transitioning from pediatric to adult SCD health care systems can be disjointed and poorly coordinated, contributing to the high morbidity and mortality seen in this population. There is no universally accepted definition of a successful SCD care transition, nor are there existing standards and recommendations for SCD clinicians. National Alliance of Sickle Cell Centers (NASCC) uses a described modified Delphi process to reach consensus among its members, through which we defined standards and recommendations for transitioning care from pediatric to adult care health systems, including the definition of successful transfer and integration into a

SUBMITTER: Guarino SH 

PROVIDER: S-EPMC12452592 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature