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Dataset Information

A Global Assessment of Patient Experience and Quality of Life in Generalized Pustular Psoriasis: Results from Interviews and Online Surveys.


ABSTRACT:

Introduction

Generalized pustular psoriasis (GPP) is a chronic, systemic, neutrophilic inflammatory disease that significantly impacts patients' quality of life (QoL). A multinational panel of patients with GPP participated in surveys and interviews, with the aim to assess the impact of chronic symptoms and GPP flares on QoL and well-being, and to better understand the resources and support that patients need.

Methods

Patients (aged 18-65 years) with a confirmed diagnosis of GPP (> 1 month), who had experienced ≥ 1 flare in the past year and were receiving active treatment for GPP were recruited through databases and healthcare professionals (HCPs).

Results

A total of 18 patients (female, n = 15) participated in the study (USA, n = 7; Germany, n = 4; China, n = 4; and

SUBMITTER: Kole LCS 

PROVIDER: S-EPMC12454240 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature