Parental Stress and Family Quality of Life in Families of Individuals Living With Angelman Syndrome.

ABSTRACT:

Background

Angelman syndrome (AS) is a developmental disorder caused by one of four molecular aetiologies. Affected individuals have intellectual disability (ID), limited speech, seizures and sleep problems. Parents of individuals with AS exhibit elevated stress compared to parents of individuals with other IDs. We examined parental stress and family quality of life (FQOL) over time in families of individuals living with AS.

Methods

Data were collected in a natural history study of AS. The Parenting Stress Index, Third Edition (PSI) and the Beach Center FQOL Scale assessed parental stress and FQOL. Stress and FQOL were examined across AS molecular subtypes, and predictors were analysed using a generalised linear model. Relationships between parental stress and FQOL were exam

SUBMITTER: Merton C 

PROVIDER: S-EPMC12455052 | biostudies-literature | 2025 Sep

REPOSITORIES: biostudies-literature